Resources if you are a new parent of an LP:
Why should I get involved with LPA now, when my child is still an infant?
At this point in your child's life, you as a parent might find the involvement with SFBAC very advantageous. Our parents and members have much accumulated knowledge and experience with issues that might interest you: developmental milestones to look for, medical conditions to be attentive about, medical practitioners to be in contact with, medical insurance issues to deal with, and much more.
What other local organizations are available for me as a parent?
Parents Helping Parents is an organization with chapters in the South Bay and in Alameda County. For more information about community and family programs, you can go to the web site, php.com.
What other resources are available for my pre-school child?
The Early Start Program is for infants and toddlers from birth to 36 months who are eligible for early intervention services after an assessment and documented evaluation concludes that one of the following criteria are met:
1. The child is at high risk for delayed development in cognitive, communication, social, emotional, adaptive, physical (orthopedic) or motor (muscular) development, including vision and hearing.
2. The child is at high risk for delayed development due to diagnosis of established risk conditions of known etiology.
3. The child is at high risk for having a substantial developmental disability due to a combination of risk factors.
Early Start services can include a teacher, physical therapist, or speech therapist who will come to your house once a week to provide services, classes for parents and for parents/kids (mommy and me type classes), and even preschool classes. You usually can get an evaluation for Early Start after contacting your regional center. You can find out about the Early Start Program (in some states called Early Intervention) at the website: https://www.sccoe.org/depts/students/Pages/earlystart.aspx. Early Head Start is a childcare program that is federally mandated to have 10% of their pre-school classes available for children with disabilities without any income restriction.
What is a school IEP/504 Plan and how to find help preparing for it?
According to the federal Americans with Disabilities Act (ADA), individuals who have any form of dwarfism are considered to be disabled and are therefore protected by law. The Individuals with Disabilities Education Act (IDEA) is a US federal law that governs how states and public agencies provide early intervention, special education, and related accessibility services to children with physical or learning disabilities. The law addresses the educational needs of children with disabilities from birth to the age of 21.
Public schools are required to develop an Individualized Education Plan (IEP) for every student with a learning disability who is found to meet the federal and state requirements for special education. The IEP must be designed to provide the child with a Free Appropriate Public Education (FAPE). The IEP refers both to the educational program to be provided to a child with a disability and to the annually written document that describes that educational program.
Public schools are also required to develop a 504 Plan for every student with a physical disability covered by ADA and IDEA. The 504 Plan must be designed to provide the child with FAPE. The 504 Plan refers both to the educational accessibility program to be provided to a child with a disability as well as to the annually written document that describes that educational accessibility program.
For help with an IEP or 504 Plan, you can contact our chapter: lpasfbac@gmail.com
What is the DAAA?
Dwarf Athletic Association of America is an organization established in 1985 to develop, promote and provide quality amateur level athletic opportunities for dwarf athletes in the United States. To find out more information, please click here.
What books are good for my child with dwarfism?
There are a lot of books for parents and children with dwarfism and Parents of Little People. You can find them here.
Facebook groups:
SFBAC LPA
Parents of Little People of America
LPA Parents Page
Achondroplasia!
Morquio Syndrome
Spondyloepiphyseal dysplasia and related conditions - support network
How do I order the green Dwarfism Awareness wristbands?
Please email our chapter lpasfbac@gmail.com to inquire about purchasing wristbands. Wristbands are one for $3, two for $5 or four for $10. Please inquire about bulk pricing.
Why should I get involved with LPA now, when my child is still an infant?
At this point in your child's life, you as a parent might find the involvement with SFBAC very advantageous. Our parents and members have much accumulated knowledge and experience with issues that might interest you: developmental milestones to look for, medical conditions to be attentive about, medical practitioners to be in contact with, medical insurance issues to deal with, and much more.
What other local organizations are available for me as a parent?
Parents Helping Parents is an organization with chapters in the South Bay and in Alameda County. For more information about community and family programs, you can go to the web site, php.com.
What other resources are available for my pre-school child?
The Early Start Program is for infants and toddlers from birth to 36 months who are eligible for early intervention services after an assessment and documented evaluation concludes that one of the following criteria are met:
1. The child is at high risk for delayed development in cognitive, communication, social, emotional, adaptive, physical (orthopedic) or motor (muscular) development, including vision and hearing.
2. The child is at high risk for delayed development due to diagnosis of established risk conditions of known etiology.
3. The child is at high risk for having a substantial developmental disability due to a combination of risk factors.
Early Start services can include a teacher, physical therapist, or speech therapist who will come to your house once a week to provide services, classes for parents and for parents/kids (mommy and me type classes), and even preschool classes. You usually can get an evaluation for Early Start after contacting your regional center. You can find out about the Early Start Program (in some states called Early Intervention) at the website: https://www.sccoe.org/depts/students/Pages/earlystart.aspx. Early Head Start is a childcare program that is federally mandated to have 10% of their pre-school classes available for children with disabilities without any income restriction.
What is a school IEP/504 Plan and how to find help preparing for it?
According to the federal Americans with Disabilities Act (ADA), individuals who have any form of dwarfism are considered to be disabled and are therefore protected by law. The Individuals with Disabilities Education Act (IDEA) is a US federal law that governs how states and public agencies provide early intervention, special education, and related accessibility services to children with physical or learning disabilities. The law addresses the educational needs of children with disabilities from birth to the age of 21.
Public schools are required to develop an Individualized Education Plan (IEP) for every student with a learning disability who is found to meet the federal and state requirements for special education. The IEP must be designed to provide the child with a Free Appropriate Public Education (FAPE). The IEP refers both to the educational program to be provided to a child with a disability and to the annually written document that describes that educational program.
Public schools are also required to develop a 504 Plan for every student with a physical disability covered by ADA and IDEA. The 504 Plan must be designed to provide the child with FAPE. The 504 Plan refers both to the educational accessibility program to be provided to a child with a disability as well as to the annually written document that describes that educational accessibility program.
For help with an IEP or 504 Plan, you can contact our chapter: lpasfbac@gmail.com
What is the DAAA?
Dwarf Athletic Association of America is an organization established in 1985 to develop, promote and provide quality amateur level athletic opportunities for dwarf athletes in the United States. To find out more information, please click here.
What books are good for my child with dwarfism?
There are a lot of books for parents and children with dwarfism and Parents of Little People. You can find them here.
Facebook groups:
SFBAC LPA
Parents of Little People of America
LPA Parents Page
Achondroplasia!
Morquio Syndrome
Spondyloepiphyseal dysplasia and related conditions - support network
How do I order the green Dwarfism Awareness wristbands?
Please email our chapter lpasfbac@gmail.com to inquire about purchasing wristbands. Wristbands are one for $3, two for $5 or four for $10. Please inquire about bulk pricing.