Parents Webinar Meeting
Tuesday, March 10th 2020 - 8pm PST
This is a web meeting for the parents/caretakers of our LPA chapter. It will be an open forum discussion with a moderator where parents can ask questions or discuss concerns about their children. Topics include: health, school or psychosocial issues. Questions to be submitted prior to the meeting. Please email lpasfbac@gmail.com to receive the evite and meeting information.
Tuesday, March 10th 2020 - 8pm PST
This is a web meeting for the parents/caretakers of our LPA chapter. It will be an open forum discussion with a moderator where parents can ask questions or discuss concerns about their children. Topics include: health, school or psychosocial issues. Questions to be submitted prior to the meeting. Please email lpasfbac@gmail.com to receive the evite and meeting information.
D12 Spring Regional Conference
March 27-29 2020
Palace Station Hotel and Casino, Las Vegas NV
$119/night +tax/fees
The hotel is newly remodeled and features: a casino, attached movie theater, and many dining options. It is 1/2 a mile from the strip and offers accessible shuttles to/from the airport and strip. The regional will have 2 dances, a banquet, medical appointments, workshops, DAAA sports, and more.
LPA Spring Easter Party
Saturday April 4 2020
1:30pm-4:30pm
This is a family friendly event, hosted by the Birchall Residence in Sunnyvale. It's potluck style, please bring a dish to share. Kids will enjoy crafts and an egg hunt! Evite to follow.
Spring Bocce Day in Marin
Sunday, April 26th 2020
2-4pm
Marin Bocce Federation – 550 B Street in San Rafael
Cost: $10/person
Event Coordinators: Robert & Jennifer Hamill
This will be an afternoon of sunshine and fun (and if it rains we can use the indoor courts). Each group should bring an hors d’oeuvre to share and BYOB (beer, wine, soft drinks, etc). Those not interested in playing Bocce are welcome to come and just socialize. NOTE: The Marin Bocce Federation suggests that Bocce is not appropriate for small children and toddlers. Older kids must be on their best behavior as horseplay is not tolerated and subject to ejection (seriously).
Evite to follow
Sunday, April 26th 2020
2-4pm
Marin Bocce Federation – 550 B Street in San Rafael
Cost: $10/person
Event Coordinators: Robert & Jennifer Hamill
This will be an afternoon of sunshine and fun (and if it rains we can use the indoor courts). Each group should bring an hors d’oeuvre to share and BYOB (beer, wine, soft drinks, etc). Those not interested in playing Bocce are welcome to come and just socialize. NOTE: The Marin Bocce Federation suggests that Bocce is not appropriate for small children and toddlers. Older kids must be on their best behavior as horseplay is not tolerated and subject to ejection (seriously).
Evite to follow
2020 National Conference
July 3 - July 10, 2020
Austin, TX
JW Marriott
July 3 - July 10, 2020
Austin, TX
JW Marriott
The Painted Turtle - A summer camp for kids with skeletal dysplasias
June 4th - June 8th, 2020
Lake Hughes, CA
CAMPER APPLICATION DEADLINE: MAY 7th
The Painted Turtle is a year-round medical specialty camp for children who have serious medical conditions. All campers attend free of charge. Each summer, one session is for children with skeletal dysplasias. This year the camp week the session for Skeletal Dysplasia and MPS will be June 4th-8th. Campers will find a cabin village, equestrian center with a horse barn and trail rides, fishing and boating on a private lake, archery field, gymnasium, Shamu-shaped pool, rock-climbing wall, adventure ropes course (wheelchair accessible!), woodshop center, organic farm, and new friends who understand their experiences of serious illness.
To apply and learn more about the Painted Turtle, please click on the bellow button.
June 4th - June 8th, 2020
Lake Hughes, CA
CAMPER APPLICATION DEADLINE: MAY 7th
The Painted Turtle is a year-round medical specialty camp for children who have serious medical conditions. All campers attend free of charge. Each summer, one session is for children with skeletal dysplasias. This year the camp week the session for Skeletal Dysplasia and MPS will be June 4th-8th. Campers will find a cabin village, equestrian center with a horse barn and trail rides, fishing and boating on a private lake, archery field, gymnasium, Shamu-shaped pool, rock-climbing wall, adventure ropes course (wheelchair accessible!), woodshop center, organic farm, and new friends who understand their experiences of serious illness.
To apply and learn more about the Painted Turtle, please click on the bellow button.
